New diagnosis
Learn the basic terms, write down what you were told, and prepare the questions you want answered next.
Use this path →Start here
Choose the situation in front of you.
You do not need to absorb the entire disease today. Start with the problem, appointment, or conversation that is actually in front of you.
Upcoming appointment
Create a short, useful record of symptoms, changes, medications, and priorities.
Prepare →Surgery discussion
Use a question framework for your surgeon and medical team.
Prepare →Symptoms feel urgent
Use emergency services for a medical emergency. Contact your care team for urgent concerns.
Read safety guidance →Supporting someone
Focus on listening, practical help, and respecting the patient’s decisions.
Read the guide →Trying to understand
Start with a source-based overview, then go to the original sources.
Learn the basics →New diagnosis
Write down what is known—and what is not.
A diagnosis can create more questions than answers. Begin with a simple record of the diagnosis you were given, the tests already completed, the name and contact information of your care team, current medications and supplements, and the next scheduled action.
Bring these questions to your care team
- What information supports this diagnosis?
- Where is inflammation located and how is it being monitored?
- What are the goals of the proposed plan?
- What should I do if symptoms change before the next visit?
- Who should I contact with a non-emergency question?
Next move
Prepare one useful page.
You do not need a perfect binder. Use the appointment-prep sheet to capture the information most likely to improve the next conversation.
Real questions. Lived experience.
Ask Mike J.
Medical questions belong with your care team. Questions about what work, planning, relationships, confidence, and rebuilding have looked like in real life can go to Mike.